Starting as I mean to go on…

step-forwardNext week I am taking what is, for me anyway, a really significant step. I have to believe it is a step forward and although it is not exactly brave, it is taking all my courage to move further along a path that until now has seemed one which could only lead inexorably to anxiety and unhappiness. It is a path that is meant to lead in quite the opposite direction.

Forgive me for being a little obtuse. Even that word seems designed to obstruct and prevent clear understanding. I am certainly finding this hard to express. Or easier to avoid expressing directly.

Those who know me, or have read a little about me in Dandelions and Bad Hair Days, or on this blog, will know that I was diagnosed with breast cancer at the age of 44 in 2006. I had young children and was terrified but I came through chemotherapy and radiotherapy successfully and have just been told that I can now come off of all the medication that has been keeping the beast at bay. The worst of the risk is past, apparently. No-one will say ‘you are cured’. In Somerset they don’t even say you are ‘all clear’. It is a brave man they say that will claim to have cured cancer. It can still come back but I should, with luck, do well. Good news, move on. How much easier said than done that has been for me.

From a young age I have been faced with illness – not always my own but certainly my father’s. He was diagnosed with early onset Parkinson’s when I was just starting primary school and I don’t remember him physically well at all. As with many neurological disorders he had good days and bad days and our lives were ruled, understandably, by how he was feeling. But I now know that however ‘good’ the day and however well he felt he would always assume the worst. He had suffered grief and loss in a previous marriage and despite happiness with a new family he felt disaster was never far from his life. It stopped him opening up to us, to love us as he might for fear of losing us as he lost his first family. Who could be surprised at that?

Dad died almost exactly twenty years ago and until I started counselling two years ago I didn’t realise how quickly I had taken over his role; started reading from the same script. The breast cancer confirmed it for me – I was playing a part in a tragedy of my own making. A starring role in my own disaster movie. How could I be one of the lucky ones? After all I didn’t drink, didn’t smoke, had breast-fed my children and had just got fit and healthy when I found the lump. I had all the protective factors but no, I wasn’t one of the 9 out of 10 for whom all is well. I was the 1 in 10. Cue song…

But it has gone on too long. Before Christmas I had a scare. Ultrasound and MRI scan eventually confirming that what was on my liver was not the worst it could be, but something benign. Something that is a nuisance but NOT cancer.

This post came to me when I was browsing the Poetry Archive site, as is my wont. I found this poem by Felix Dennis, which I dedicate to my dad. I wish he could have read it.

Not All Things Go Wrong…

by Felix Dennis

Not all things go wrong, and knowing
This, be wary of despair,
As you go through hell — keep going,
Make no brave oasis there.

Through the shadowlands of grieving,
Past the giants, Doubt and Fear,
Heartsick, stunned, and half believing —
Heed no whisper in your ear.

Not all things go wrong — and after
Winter’s famine comes the spring,
Kindness, beauty, children’s laughter —
Joy is ever on the wing.

This is such a simple poem but very real for me as I head into 2013.

So with the thoughts of Felix Dennis in mind, where does it leave my script? My soap opera of a life of anxiety? Well it actually changes nothing. I could think ‘well those good results were this time, there will be others’ and carry on in the same way, crucifying myself with anxiety. Or I could do what I have done and at least take steps to try to break the cycle; write a new ending to the story. Give myself some funny lines and be kind to myself. Write myself the equivalent of a retreat; not from the world but from the knotted workings of my own mind.

logoI have booked myself onto a Living Well with the Impact of Cancer two-day residential course offered by Penny Brohn Cancer Care in Bristol. I know many men and women go shortly after diagnosis or just after treatment has ended. It has taken me six years to take advantage of the charity’s support and I hope it will make the difference to me that it has to so many others; exploring the meaning of cancer in my life with people who understand the impact of the proverbial ‘journey’. I know now I have become almost phobic about cancer, avoiding friendships with those travelling the same tough road for fear of losing them, being unable to offer the support they need or assuming their experience would be mine. I barely talk about it; hardly ever write about it which is bizarre when one’s every experience could inform one’s writing. Perhaps when I come back I will open up; I will certainly tell you how I get on.

I know it will take commitment and leaving behind all the excuses I have made to myself in the past. I must want to learn how to take care of my mind and body so that instead of taking the path that meanders without purpose to the one thing certain in our lives (death, not taxes – I paid £12 this year) I will work to choose the path that might be new and scary but which offers me not a poor shadow of my old life but a new one. I will try to come to terms with the anger and disappointment and move on.

I will tear up my father’s script and write myself a new one.

This entry was posted in Book, Breast cancer, Charities, Dandelions and Bad Hair Days, Mental health, Random musings on family life, love the universe and everything, Writing and tagged , , , , , , , , , , , , . Bookmark the permalink.

12 Responses to Starting as I mean to go on…

  1. bethanfisher says:

    Good for you, Suzie. The course sounds like a great opportunity to explore your feelings around these health issues you have had to face, with people who can understand and help you to move on. I’m glad to see you’re looking after yourself by taking time out to do this, I know it’s a big step to take but could really make a positive difference to your life and I wish you the very best of luck X

  2. Viv says:

    I am here for you.

  3. chris grogan says:

    good for you !! i dont think it matters that youre 6 years down the road if the time is right its right and no matter what any one says at the back of your mind the fear of cancer returning is still lurking.Grab hold of the reigns of your life with both hands! xxxxx

  4. Lynne Earthy says:

    Love the poem Suzie, which is very fitting for me too. When my Dad died 18 years ago, I too took on a different role. I expected to go the same way and ended up in hospital 8 months later convinced I too had lung cancer that he’d had, but thankfully didnt. But since that day I couldnt relax. I seemed to drift through each day with a dark cloud over my head. When I found a breast lump I thought that was it and the black cloud became even darker. Again, thankfully it was benign but still the cloud didnt lift. I was then diagnosed with Spinal Muscular Atrophy the same muscle wasting disease that Dad had and his father before him, so the anxiety continued. I’d always remebered Dad and Grandad disabled so in a way it was normality but it isnt until you have something like this that you truelly understand what a person is dealing with. I sometimes think the mental torture is worse than the physical pain and the limitations that it brings. After major back surgery 8 years ago for a different problem I was told that the surgery hadnt been of any benefit and the pain was back and stronger. I then had a complete mental breakdown which took over my life and my husbands but thankfully we were able to protect our daughter from it as she was very young. I had actually started counselling a year before the breakdown and I found it a life saver (literally!). My counselling continued for another 6 years and during that time I trained to be a counsellor myself. I would say that counselling has been a huge benefit to my life and support anyone who is prepared to do something that can move them on and find ways of taking care of their mind and in your case, your body as well Suzie. I wasnt meaning to write all this so apologies in advance Suzie!! I hope you enjoy the 2 day cours Suzie and I look forward to hearing how you get on. x

    • keatsbabe says:

      I didn’t realise you had been through so many similar experiences but I do know how much you cope with with such courage now. Thanks so much for taking the time to write – I don’t mind how long the comments are, I so appreciate your support.

  5. Melanie says:

    Your post was inspiring to me on so many fronts! I’m glad I found your blog. Hope your retreat is enlightening and that 2013 sees you well mentally and physically.

    • keatsbabe says:

      Your blog inspired me too! We really do have to take control of our lives, especially as we enter our middle years and the world starts treating us as if we a re only a tad more than invisible. It is such hard work though. I am a bit of a lazy so and so and am hoping for a kick start (or just a kick…)

  6. 40s Chic says:

    Good for you Suzie. You are very brave to embrace your fears and move on and I wish you all the best in doing so. Your post has really spoken to me. This year for me also will be a momentous year and I have a path I have been afraid to walk on, but I am slowly summoning the courage and strength to do so.

  7. Peter Grogan says:

    Love you loads, will help in any way I can, as always – Peter X

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